'Most of us know someone with cerebral palsy': Children's of Alabama destigmatizing the disability
Cerebral palsy is the most common motor disability in children, and lifelong disability in adults.
According to the Centers for Disease Control, one in 345 people in the United States has cerebral palsy.
Dr. Cynthia Wozow with Children's of Alabama has spent her life navigating the world with cerebral palsy.
She now uses her experience to help her cerebral palsy patients.
"If you meet me, it's because something changed in your world, that you didn't expect. And so, it's my job to ensure that you are able to do everything that you need to do. So, advocating for those things such as accessibility within their school environment, the least restrictive environment for their education, is something that we do commonly or as my kids transition off into college, making sure that that environment continues to be accessible," said Wozow.
Her own experiences help her relate to and care for her patients on a deeper level.
"A lot of my patients have different issues related to the injury that they had during the first few years of life, including muscle tightness or hypertonicity. And because of the tightness of their muscles they can have different effects," said Wozow.
Access to healthcare, such as medicine, surgery, and rehabilitation can make the difference when it comes to quality of life for cerebral palsy patients.
"So that includes loss of range of motion, pain, and changes in their bone structure actually from the tightness pulling. And so, by intervening with these therapies and these medications early, we can decrease the complications and decrease the pain," said Wozow.
Wozow calls the disability common and wants to fight stigmas associated with it.
"Most of us know someone with cerebral palsy, whether we realize it or not because so many individuals function throughout the day as professionals and are doing what they love. But it's very important that we acknowledge this diagnosis because the way that we talk about disabilities, like cerebral palsy, shapes the way individuals with disabilities are viewed," said Wozow.
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Children's of Alabama is currently working with the University of Alabama at Birmingham to make the transition from child to adult cerebral palsy healthcare smoother once that patient ages out of the system at Children's.
National Cerebral Palsy Awareness Day is March 25.