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Disappearing, altered federal websites are a problem for everyone
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By Khushboo Rathore

Wisconsin Watch

Wisconsin Watch is a nonprofit, nonpartisan newsroom. 

Subscribe to their newsletters for original stories and Friday’s news roundup.


The federal Centers for Disease Control’s Behavioral Risk Factor Surveillance System website, which includes a range of data sets and tools long used to map public health trends, includes this note: 

“CDC’s website is being modified to comply with President Trump’s Executive Orders.” 

What exactly has been modified? The website doesn’t specify. Methodology and data glossaries are no longer readily available. 

The CDC isn’t the only federal agency during President Donald Trump’s second term to alter public information online. A litany of federal websites vanished following Trump’s Jan. 20 inauguration only to reappear later with little to no information about any changes made. Some websites, like the Department of Justice’s database of defendants charged in the Jan. 6 storming of the Capitol, are gone altogether. 

For a data journalist, this removal and possible manipulation of federal data are concerning and frustrating because it limits the information we can use to make sense of our world. 

What exactly is data journalism? The term might confuse some people. To me it means using numbers to investigate inequity and injustice and find patterns and anomalies in an otherwise anecdotal world. 

Credible and accessible federal, state and local data make such investigations possible, allowing us to identify solutions to challenges that affect Wisconsin communities. Journalists are hardly the only people to rely on such data. Federal data sets are used by researchers, public officials and students across the world to understand our communities.

Certain changes to government websites under a new president are relatively common, as illustrated by the End of Term web archive. The archive has, since 2008, preserved information from government websites at the end of presidential terms — collecting terabytes of information. The difference this time? The Trump administration has sought to tear apart full data sets to remove information it doesn’t like, particularly data related to diversity, equity, inclusion and accessibility. 

A stark example is the Youth Risk Behavior Survey — a nationally representative study that “measures health-related behaviors and experiences that can lead to death and disability among youth and adults.” The survey produced volumes of data, which could help communities understand how race, mental health, gender identity and sexual orientation shape health-related behaviors. The data was temporarily taken offline until a court order required the Department of Health and Human Services  to restore the website. 

A note on the website now says, in part: “This page does not reflect biological reality and therefore the Administration and this Department rejects it.” 

Still, like with other restored websites, we don’t know whether information has been scrubbed or changed to conform with the Trump administration’s worldview. We don’t know whether other data or information will change without notice. 

Thankfully, journalists and coding experts are archiving all the data they can get their hands on. Big Local News, Library Innovation Lab, Internet Archive and Data Rescue Project are among organizations making sure the public has access to such information, as is our right.

But these archivists can save only what is already available. They can’t tell us what is being removed or manipulated before data reaches the public. They can’t tell us what information is being kept secret. Americans have long disagreed on politics, and that’s OK. Partisan debate is healthy and necessary in a democracy. But partisanship is now sowing mistrust in the data we rely on to tell the American story. 

And right now? We need concrete facts more than ever.

‘Just plain old Larry’: A Wisconsin man’s testimony about gender-affirming care went viral. Here’s his story.
Milwaukee retiree Larry Jones, 85, came to a legislative hearing supporting a ban. He changed his mind after hearing from transgender youth.
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By Hallie Claflin

Wisconsin Watch


When Larry Jones arrived at the Wisconsin State Capitol on March 12, he didn’t know what he was getting into — let alone that he would be a viral internet sensation the next day. 

The 85-year-old self-described conservative had been invited by his grandson to a public hearing on a Republican-authored bill that would ban gender-affirming medical care for transgender youth in the state. He decided to make the short drive from his home in Milwaukee. 

“I thought, ‘OK, I’ll go up there and listen to a couple people moaning about some kind of problems and be there for a couple hours and be long gone,’” Jones told Wisconsin Watch. “I got into something that I really didn’t know a heck of a lot about.” 

The hearing was packed with speakers there to testify either for or against the bill. Most people were limited to two minutes, but the hearing lasted more than eight hours. Jones was there in support of the bill, but wasn’t intending to get up and speak. But after listening to nearly seven hours of testimony, he put his name down. 

“I have very little knowledge of gay people and things like that there, so when I came here, my eyes were opened,” he told the state Assembly’s Health, Aging and Long-Term Care Committee just after 9 p.m. “I was one of the critics that sat on the side and made the decision there was only two genders, so I got an education that was unbelievable. And I don’t know just exactly how to say this, but my perspective for people has changed. … I’d like to apologize for being here, and I learned a very lot about this group of people.”

plain old larry
Larry Jones, 85, shown in his home in Milwaukee on March 21, 2025, attended a Wisconsin Assembly hearing with the intention of supporting a bill that would ban gender-affirming care for minors but changed his mind after hearing testimony from trans youth. The moment, captured on video by WisconsinEye, was celebrated by those in attendance and shared widely online. / Photo by Joe Timmerman, Wisconsin Watch

After he spoke, several attendees applauded.

Shortly after, his grandkids told him about a video of his testimony going viral online — as of Sunday the video had nearly 1 million views on YouTube. They called him a hero.

“Thank you for the compliment, but what the heck are you talking about?” he recalled responding. 

Jones told Wisconsin Watch he doesn’t think he did anything out of the ordinary and spoke because he felt like he owed it to the people there protesting the bill. He never thought a few sentences would garner such attention. 

“After a day or two, my 15 minutes of fame were long gone, and I went back to who I am, just plain old Larry,” Jones told Wisconsin Watch. 

Others saw an act of courage.

“Listening to his testimony was incredible,” one user commented under the viral video of Jones on Instagram. “It is powerful and brave to admit that you were wrong and have learned. I wish many of our legislators had that same strength.”

This story was originally published by Wisconsin Watch and is shared through the Wisconsin Newspaper Association. 

Wisconsin Watch is a nonprofit, nonpartisan newsroom. Subscribe to their newsletters for original stories and Friday news roundup.


The bill

Republican politicians in recent years have frequently targeted transgender rights. One of President Donald Trump’s first executive orders the day he took office disregarded biological nuance in declaring there are only two sexes, male and female, which can’t be changed, and that gender identity “does not provide a meaningful basis for identification and cannot be recognized as a replacement for sex.” A later order declared the country wouldn’t fund transition of youth from one sex to another or medical institutions that provide such health care.

Wisconsin Assembly Bill 104 would ban gender-affirming health care, including puberty-blocking drugs, hormone replacement therapy or surgery, for those under the age of 18. Under the bill, medical providers found to be providing this care could have their licenses revoked. The legislation faces a certain veto by Democratic Gov. Tony Evers, who has vetoed a similar bill before.

The authors of the bill — Sen. Cory Tomczyk, R-Mosinee, and Rep. Scott Allen, R-Waukesha — say it would “protect minors from making life-altering, irreversible decisions that cause mental and bodily harm.”

“They’re not voting on this bill as a person, they’re voting Republican party lines,” Jones told Wisconsin Watch. “That shouldn’t be that way. … Party line is a bunch of garbage.” 

It was just one of four bills raised in the Legislature in recent weeks targeting transgender youth in Wisconsin. Two others are aimed at banning transgender girls and women from participating in high school and collegiate women’s sports. Another would prohibit school employees from using a student’s preferred name and pronouns without parental consent. 

For hours, Jones listened to the stories of kids who wanted to transition and said it seemed like “their brain was tearing them apart.” He now believes the decision to receive gender-affirming care should involve a child, a qualified doctor and a parent — not lawmakers. He likened the issue to lawmakers banning doctors from providing abortions.

Just the introduction of such bills can have negative effects on LGBTQ+ kids, research shows. The Trevor Project, a nonprofit that works to end LGBTQ+ youth suicide, found in a 2024 national survey that 90% of LGBTQ+ young people said their well-being was negatively impacted due to recent politics. Research also shows that transgender youth who are called by their preferred names and pronouns are happier and healthier.

Jones said a 14-year-old transgender teen — one of the youngest speakers who advocated for their right to go on hormones — helped to change his perspective at the hearing. In their testimony, they shared that they had recently contemplated suicide.

“I started to listen to this kid, and it wasn’t some kind of whim or something like that. This kid was actually suffering,” Jones said. “And I thought to myself, nobody has to do that. You’re only a kid.”

The GOP-controlled committee voted to advance the bill. Republican lawmakers in the Assembly passed it last week. 

“Children are not allowed to get tattoos, sign contracts, get married, or smoke — so why would we allow them to physically change their gender?” Rep. Tyler August, R-Walworth, said in a statement. 

Jones had a different take. 

“All of these kids, they deserve a chance to see where they belong,” he said.


Who is Larry?

Jones grew up in a small, rural unincorporated town in northern Michigan before moving to Milwaukee when he was 19 years old. 

“When I moved to the city, it was like I was a kid in a candy store. I discovered books, and once I discovered books, I discovered the world,” he said. 

For most of his life, he worked in the maintenance department at the Milwaukee County Community Reintegration Center  — a prison formerly known as the House of Corrections. There, he encountered gay men and women, but said he had never met someone who was transgender. 

“If there’s something you don’t understand or don’t know anything about, it kind of frightens you a little bit,” Jones said. 

When he was younger, he said LGBTQ+ people were “hidden.” 

“In the area where I grew up … men were men,” Jones said. “I was taught by men who had their own visions of what gay people were like. They were called ‘queers’ and ‘fairies’ and off-the-wall, ungodly names back in the day. As I grew older … the whole world changed.”

Jones calls himself conservative, but said he’s willing to look at both sides of an issue. He mostly tunes into Fox News and local TV stations. He said he still has a lot to learn about the transgender community, and he’s made that his mission for the next six months or so. 

Prior to the hearing, he said he believed that someone who was transgender was “play acting” and simply changed their name and clothes along with a few other cosmetic things. 

“It’s through no fault of their own. I don’t think there’s a medical problem. I think these kids were born this way,” Jones said. “I looked at it through a different perspective, from a different set of eyes, and I promised myself that I would look into this with a clearer sense of understanding.”

After his testimony, a young woman handed him a note that read, “Thank you for being open to hearing all this and being open to changing your mind. That’s brave.” Jones kept it. 

His advice to others? “Don’t wear a pair of blinders and walk down the road. Keep an open mind.”


— Wisconsin Watch reporter Jack Kelly contributed to this report.