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Published on May 8, 2025

Setting Realistic Goals for Long-Standing Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is an autosomal recessive disorder caused by mutations in both copies of the SMN1 gene on chromosome 5q, occurring in about 1 in 15,000 live births. In the U.S., carrier rates vary by ethnicity, from 1 in 47 among White …

Source: NeurologyLive - Pending
Published on 01:56 GMT

'Doing our job as parents': How this toddler's parents were able to get her a life-saving $2.2 million infusion

Luna received life-saving treatment costing millions of dollars for just one infusion. SAN ANTONIO — Genetics often plays a role in the diseases or conditions a child may be born with. Now we're reporting on a disease that, while it has no cure, can be …

Source: KENS - Texas - Pending
Published on May 9, 2025

'It was eye-opening': How a WoW documentary inspired Muscular Dystrophy UK's Liam Quinn to raise money and build ...

I had the pleasure of attending a Netflix event around the WoW documentary The Remarkable Life of Ibelin last year—one that was attended by folks from Muscular Dystrophy UK, a charity that helps fund research into the kinds of muscle-wasting conditions …

Source: PC Gamer - Neutral
Published on May 9, 2025

Diana Bharucha-Goebel, MD, and Bakri Elsheikh, MBBS, FRCP, on How New Therapies Are Changing SMA Care Guidelines

This video originally appeared on our sister site, NeurologyLive®. The treatment landscape for SMA has shifted dramatically over the past decade. We now have three FDA-approved, disease-modifying therapies for SMA in children. On top of that, newborn …

Source: CGTLive - Neutral
Published on May 9, 2025

Special budget allocated to rare, hard-to-treat diseases

TEHRAN – The administration has approved 120 billion rials (some 144,000 dollars) for treating rare and hard-to-treat diseases in the current Iranian year, which started on March 21. Rare disease is often described as a specific health condition affecting …

Source: Tehran Times - Gov't Propaganda
Published on May 9, 2025

St. Jude Neurologist Richard Finkel Included in TIME100 Health List

Richard S. Finkel, MD, a pioneering pediatric neurologist and director of the Center for Experimental Neurotherapeutics (CENT) at St. Jude Children’s Research Hospital, has been distinguished on Time Magazine’s TIME100 Health list for 2025. This …

Source: Bioengineer.org - Pending
Published on May 8, 2025

Samay Raina's troubles increased again??!

Samay Raina New Controversy: The troubles of famous YouTubers and stand-up comedians have increased once again. The supreme court has sought the presence of five other influencers including Samay Raina. Let's read in which case the supreme court has …

Source: India Herald - Indeterminate
Published on May 7, 2025

Delhi High Court division bench overturns injunction ruling amid genus and species patent controversy

On 24 March 2025, a single judge of the Delhi High Court refused to grant an interim injunction against Natco Pharma for manufacturing a generic version of F Hoffmann-La Roche’s risdiplam – the only oral drug available in India for the treatment of spinal …

Source: Intellectual Asset Management - Pending
Published on May 8, 2025

Argenx Reports First Quarter 2025 Financial Results And Provides Business Update

(MENAFN- GlobeNewsWire - Nasdaq) $790 million in first quarter global product net sales First patients treated with VYVGART Hytrulo pre-filled syringe for self-injection in US and Germany CIDP global expansion with positive CHMP opinion for VYVGART-SC ( …

Source: MENAFN - Indeterminate
Published on May 7, 2025

Starting Treatment in SMA: What Clinicians Need to Consider

Spinal muscular atrophy (SMA) is an autosomal recessive disorder caused by mutations in both copies of the SMN1 gene on chromosome 5q, occurring in about 1 in 15,000 live births. In the U.S., carrier rates vary by ethnicity, from 1 in 47 among White …

Source: NeurologyLive - Pending
Published on May 7, 2025

UPSC Essentials | Daily subject-wise quiz : Science and Technology MCQs on genome-edited rice, Shiv Shakti point and ...

UPSC Essentials brings to you its initiative of subject-wise quizzes. These quizzes are designed to help you revise some of the most important topics from the static part of the syllabus. Attempt today’s subject quiz on Science and Technology to check your …

Source: The Indian Express - Center-left
Published on May 7, 2025

Nevada looks for way to continue ARPA-funded expansion of rare disease screenings for newborns

Nevada two years ago began using American Rescue Plan Act dollars to expand screenings of newborns for rare diseases. With the end of that federal funding in sight, state lawmakers are looking for a way to keep providing early detection of rare but …

Source: Nevada Current - Center-left
Published on May 7, 2025

Preventive measures needed for genetic diseases in infants

HÀ NỘI – Around 40,000 children are born with congenital disabilities in Việt Nam every year, according to health sector statistics. Up to 80 per cent of children with genetic disorders are born to healthy parents or parents with no family history of these …

Source: Vietnam News Agency - Pending
Published on May 6, 2025

Two families get new homes from Habitat for Humanity Riverside

Two families are literally living the dream in San Bernardino. They’ve moved into new homes built by Habitat for Humanity Riverside. Keyawna Douglas and Natalie Lopez and their children celebrated the occasion during a Friday, April 25, dedication ceremony …

Source: The Sun - California - Pending
Published on May 6, 2025

SMA Treatment Today: How New Therapies Are Changing Care Guidelines

Spinal muscular atrophy (SMA) is an autosomal recessive disorder caused by mutations in both copies of the SMN1 gene on chromosome 5q, occurring in about 1 in 15,000 live births. In the U.S., carrier rates vary by ethnicity, from 1 in 47 among White …

Source: NeurologyLive - Neutral
Published on May 6, 2025

Increasing Transduction Efficiency by Enhancing Co-Localization of Viruses and Cells

Novel sponge matrix speeds the development of gene-editing therapies Sponsored content brought to you by ATTCGA ➜ ATTCCA That’s gene editing. On paper, it is merely the rearrangement of letters. However, the road to editing genes in hopes of a therapeutic …

Source: Genetic Engineering and Biotechnology News - Pending
Published on May 6, 2025

Hertz Foundation Announces 2025 Hertz Fellows

Newswise — The Hertz Foundation, a nonprofit organization dedicated to empowering the most promising innovators in science and technology, has announced 19 recipients of the 2025 Hertz Fellowships in applied science, engineering and mathematics. The Hertz …

Source: Newswise - Neutral
Published on May 6, 2025

PTC's Huntington study was positive. Why did its stock fall?

In a potentially pivotal trial, PTC Therapeutics' experimental therapy for Huntington's disease (HD) met its primary endpoint, but questions about the data have raised doubts about the company's ability to seek accelerated approval. The phase 2 …

Source: pharmaphorum - Neutral
Published on May 5, 2025

Supreme Court asks Samay Raina, 4 others to appear over remarks against persons with disabilities

The Supreme Court on Monday directed the personal presence of comedian Samay Raina and four other influencers before it over allegations that they ridiculed persons with disabilities through insensitive comments.Justice Surya Kant, presiding over a two- …

Source: The Indian Express - Center-left

03 days 01:50:54

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Published on May 9, 2025 - 23:36 GMT

RPM Healthcare Study on Stage 2 Hypertension Published in The American Journal of Managed Care

ST. PETERSBURG, FL, FL, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- RPM Healthcare is proud to announce the publication of its peer-reviewed study, “Effect of Remote Patient Monitoring on Stage 2 Hypertension,” in The American Journal of …

Distribution channels: Companies, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 23:36 GMT

RPM Healthcare Applauds New York’s Medicaid Reimbursement for Remote Patient Monitoring

ST. PETERSBURG, FL, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- RPM Healthcare proudly supports New York State Medicaid’s decision to reimburse Remote Patient Monitoring (RPM) services under CPT code 99457, marking a significant advancement …

Distribution channels: Companies, Healthcare & Pharmaceuticals Industry ...

Published on May 9, 2025 - 10:23 GMT

U.S. Home Healthcare Market Set to Witness Significant Growth by 2025-2032 | Medline Industries Inc., Medtronic Plc, 3M

BURLINGAME, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- U.S. Home Healthcare Market is estimated to be valued at USD 26.59 Bn in 2025 and is expected to reach USD 40.78 Bn in 2032, exhibiting a compound annual growth rate (CAGR) of 6. …

Distribution channels: Healthcare & Pharmaceuticals Industry
Published on May 9, 2025 - 10:13 GMT

Rfid In Healthcare Market Projected To Witness Massive Growth, 2025-2032 | Microchip Technology, Accenture, Hitachi, 3M

BURLINGAME, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Rfid In Healthcare Market is estimated to be valued at USD 11.9 Bn in 2025 and is expected to reach USD 43.39 Bn in 2032, exhibiting a compound annual growth rate (CAGR) of 20.3% from …

Distribution channels: Healthcare & Pharmaceuticals Industry

Published on May 9, 2025 - 23:59 GMT

Gov. Kemp Signs FY26 Budget - Providing Hurricane Helene Relief and Important Investments in Education, Healthcare, and ...

ATLANTA, GEORGIA, May 9 - Governor Brian P. Kemp, joined by First Lady Marty Kemp, Lt. Governor Burt Jones, House Appropriations Chairman Hatchett, constitutional officers, and members of the Georgia General Assembly, and state leaders today signed the …

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Published on May 9, 2025 - 21:02 GMT

HOW DO U.S. HEALTHCARE PROVIDERS KNOW HOW AND WHERE TO SELL $3.4B ANNUALLY IN SERVICES TO INTERNATIONAL CLIENTS?

Medical centers and other U.S. providers of high-acuity or highly specialized healthcare services offer care that is unsurpassed in the world. Prior to 2010, no one really knew how well this industry was doing in international markets. That’s when, through …

Distribution channels: Business & Economy
Published on May 9, 2025 - 16:10 GMT

Nelipak® Healthcare Packaging expande operaciones en Costa Rica

CRANSTON, Rhode Island, May 09, 2025 (GLOBE NEWSWIRE) -- Nelipak® Corporation (“Nelipak®”), un proveedor líder global de soluciones de empaque para el sector de salud para dispositivos médicos, diagnóstico, administración de medicamentos farmacéuticos y …

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Published on May 9, 2025 - 14:00 GMT

Nelipak® Healthcare Packaging to Expand Operations in Costa Rica

CRANSTON, R.I., May 09, 2025 (GLOBE NEWSWIRE) -- Nelipak® Corporation (“Nelipak®”), a leading global provider of healthcare packaging solutions for medical device, diagnostic, pharmaceutical drug delivery, and other demanding applications, announced that …

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Published on May 9, 2025 - 23:36 GMT

RPM Healthcare Applauds New York’s Medicaid Reimbursement for Remote Patient Monitoring

ST. PETERSBURG, FL, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- RPM Healthcare proudly supports New York State Medicaid’s decision to reimburse Remote Patient Monitoring (RPM) services under CPT code 99457, marking a significant advancement …

Distribution channels: Companies, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 23:36 GMT

RPM Healthcare Study on Stage 2 Hypertension Published in The American Journal of Managed Care

ST. PETERSBURG, FL, FL, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- RPM Healthcare is proud to announce the publication of its peer-reviewed study, “Effect of Remote Patient Monitoring on Stage 2 Hypertension,” in The American Journal of …

Distribution channels: Companies, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 22:56 GMT

Nurses Denounce Trump Health Policies to Celebrate Nurses Week

Nursing advocates release statement and video calling for global resistance to Trump Administration’s attacks on public health BALTIMORE, MD, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Hundreds of nurses have signed a statement opposing …

Distribution channels: Environment, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 22:50 GMT

Less Cancer Calls on Congress to Exercise Compassion as DOGE Cuts Cancer Research and Prevention Initiatives

WASHINGTON, DC, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Less Cancer, a 501(c)3 charity working to educate the public and create proactive public policies regarding cancer and cancer prevention, is calling on Congress and the public to …

Distribution channels: Companies, Culture, Society & Lifestyle ...
Published on May 9, 2025 - 20:53 GMT

A groundbreaking discovery of a common master switch to cure Alzheimer’s, Parkinson’s, and other brain-related diseases

A breakthrough that could save millions of lives NEW YORK, NY, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- The 21st edition of Sustainability Through Science and Technology Summit 2025 (SIPS 2025), dedicated to Prof. Aaron Ciechanover, Nobel …

Distribution channels: Chemical Industry, Education ...
Published on May 9, 2025 - 20:05 GMT

Ketamine Lead Gen Now Serves Wellness Clinics in 40+ States - Leading Growth in Mental Health & Wellness Marketing

With 10+ years in mental health marketing, Ketamine Lead Gen sets the standard for patient growth in Ketamine, TMS, MeRT, Peptides, HRT, NAD+, and weight loss. SAN DIEGO, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Ketamine Lead Gen, a …

Distribution channels: Healthcare & Pharmaceuticals Industry, Media, Advertising & PR ...
Published on May 9, 2025 - 20:00 GMT

Tivar® H.O.T. UHMW Enhances Food Processing Equipment Performance in High-Heat Applications

Tivar® H.O.T. UHMW from Interstate Advanced Materials is engineered to enhance food processing equipment performance in high-heat environments. SACRAMENTO, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Food processing and packaging …

Distribution channels: Agriculture, Farming & Forestry Industry, Consumer Goods ...
Published on May 9, 2025 - 19:48 GMT

A groundbreaking discovery of a common master switch to cure Alzheimer’s, Parkinson’s, and other brain-related diseases

A breakthrough that could save millions of lives LOS ANGELES, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- The 21st edition of Sustainability Through Science and Technology Summit 2025 (SIPS 2025), dedicated to Prof. Aaron Ciechanover, …

Distribution channels: Chemical Industry, Education ...
Published on May 9, 2025 - 19:37 GMT

Stronger than the Storm and NEW DAY to Host Psychological First Aid Training at 2025 Governor's Hurricane Conference

Participants to Learn How to Respond During Crises, Disasters, and Traumatic Events; Hurricane Conference Takes Place May 11-16, 2025, in West Palm Beach, FL WEST PALM BEACH, FL, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Stronger than …

Distribution channels: Book Publishing Industry, Conferences & Trade Fairs ...
Published on May 9, 2025 - 19:36 GMT

Wise Law Offices and Keely Wise Lead Chicago’s Fight Against Breast Cancer with Susan G. Komen Race for the Cure

Wise Law and Keely Wise Lead Chicago’s Fight Against Breast Cancer. CHICAGO, IL, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Wise Law Offices, a group of award-winning trial lawyers serving Chicago since 2002, proudly announces their …

Distribution channels: Business & Economy, Companies ...
Published on May 9, 2025 - 19:27 GMT

Adit Expands Into Chiropractic Care, Bringing Experience From 3,500+ Practices

Adit, a leading all-in-one platform healthcare is now proud to announce its official expansion in Chiro. HOUSTON, TX, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Chiropractors now have access to the powerful digital tools that have helped …

Distribution channels: Business & Economy, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 19:23 GMT

Amerigo Scientific Announces Cell Proliferation and Viability Assay Kits to Unlock Precision in Cell Research

NEW YORK, NY, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- In today’s fast-moving world of cell biology, there is a need for reliable and reproducible analysis of cell proliferation and viability to progress research in drug discovery, cancer …

Distribution channels: Business & Economy, Companies ...
Published on May 9, 2025 - 19:07 GMT

The Springs of Ballentine Celebrates Grand Opening with Fuquay-Varina Chamber of Commerce

The residents of Wake County have a new Senior Living community for their residents FUQUAY-VARINA, NC, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- The Springs of Ballentine officially celebrated its grand opening on May 8th with an …

Distribution channels: Companies, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 19:02 GMT

American Roentgen Ray Society (ARRS) Publishes Inaugural Issue of New Imaging Journal, Roentgen Ray Review (R3)

Publication of ARRS' new peer-reviewed radiology journal, Roentgen Ray Review, coincides with 125th anniversary of North America’s first radiological society LEESBURG, VA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- The American …

Distribution channels: Conferences & Trade Fairs, Education ...
Published on May 9, 2025 - 18:59 GMT

RHRC Receives Legislative Funding to Advance Rural Health Sustainability and Payment Reform

Legislative funding empowers RHRC to advance sustainable rural health models and payment reforms, improving access and care quality in underserved communities. MANHEIM, PA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- The Rural Health …

Distribution channels: Emergency Services, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 18:52 GMT

Royal 4 Systems Partners with Labor AI’s ELS solution for their WISE 11.0 cloud WMS

Royal 4 Systems announced the release of LaborAI’s Engineered Labor Standards solution in WISE Warehouse Management System (version 11.0) LONG BEACH, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Royal 4 Systems, a leading producer and …

Distribution channels: Automotive Industry, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 18:23 GMT

THE DREAMCHILD FOUNDATION ANNOUNCES LINE-UP FOR THE 2025 HOODTALK MUSIC FESTIVAL: UNITY EDITION ON MAY 9 IN ACCRA, GHANA

Powered by Virtual Hub, StepNorth, Platinum Star Media Group, Inc., and Fly-Away Promotions, Inc, the festival kicks off at 7 PM (GMT) in Independence Square ACCRA, GHANA, May 9, 2025 /⁨EINPresswire.com⁩/ -- The DreamChild Foundation proudly …

Distribution channels: Building & Construction Industry, Business & Economy ...
Published on May 9, 2025 - 17:45 GMT

Kent Holtorf M.D. Presents 'Fresh Perspectives' on 'the Rise in Autism’’ & 'How Peptides Advance Longevity', May 22

Author & TV Guest, Dr. Kent Holtorf M.D., explores 'Autism's Rise & The Role Peptides Play in Longevity' Thursday, May 22 – Epoch Media Center in Irvine, Ca. IRVINE, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- …

Distribution channels: Conferences & Trade Fairs, Healthcare & Pharmaceuticals Industry ...
Published on May 9, 2025 - 17:35 GMT

Join Jay Nolan Community Services for a Picnic in the Park Promoting Inclusion for Neurodiverse Individuals

Enjoy fun activities, food, and learn about new services for neurodiverse individuals in the Monterey Bay area. SANTA CRUZ, CA, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Jay Nolan Community Services, Inc. (JNCS) is excited to announce its …

Distribution channels: Culture, Society & Lifestyle, Education ...
Published on May 9, 2025 - 17:14 GMT

Local Veteran chosen to attend the National Veterans Creative Arts Festival

Detroit Veteran Dances to Gold DETROIT, MI, UNITED STATES, May 9, 2025 /⁨EINPresswire.com⁩/ -- Local Detroit U.S. Army Veteran, Dari Pfeiffer has been selected as a gold medal winner in the 2025 National Veterans Creative Arts Competition, Dance …

Distribution channels: Culture, Society & Lifestyle, Healthcare & Pharmaceuticals Industry ...